About 6 weeks ago I blogged about an upcoming lumbar puncture. It was supposed to have happened on July 26 at The Chiari Institute. Well............never happened because my husband failed to pay my premium on time. By the time my insurance got reinstated, the appointment needed to be canceled and my insurance approved the procedure for the hospital. As it stands now, I'm scheduled for Aug 10th. I've already had pre-surgical testing and now have to get clearance from my PCP. So once again, I hav… Continue

http://www.nytimes.com/2010/07/31/health/research/31stem.html?_r=1&ref=todayspaper

i love to visit my girlfriend! one of the many reasons is because she has a hard copy of the NY Times... there is something pleasing about holding the paper when you read it... im not gonna mention how damned hard it is and how it hurts to try to hold and read the danged thing...
what i am going to… Continue

Today I had my first pain management appointment. Wow, that pretty much sums it up. I found a local doctor that knew what sm was (every other local doctor I have met with has looked at me like I have at least four or five heads when I've said that I have sm), knew which neurosurgeon I had seen prior and told me that the ns had no bed side manner or office manner either. He spent over 30 minutes with me going over my history and weighing options with me. When he watched me pull out my pharmacy

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hi there your story sounds quite similiar to mine
can you email me please
apowter@transglobalservice.com

Well this my first blog, I'm a tech. dumbie,so I hope I'm doing this right? First of all this site is a wonderful site for support, info.,and all the other stuff we might be going thru. I have been a member for about 6 weeks or so but I have not told yous about my journey (my life) with this lovely lol condition we call SM, so here I go... i will try to make this short as possible. I guess I will start it when my youngest boy was born I went for my 6 week check-up after he was

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Hi just asking, my doc says for me to go to the Cleveland clinic,mayo clinic, whereever but it is out of network of course and without money(husband currently bankrupt and nasty to me not understanding) has anyone seena nyone good or what type of doc should I see? Primary says he knows nothing about SM, I've seen neurosurgeons here and no onewould ever operate so "acquaitances" are asking then why bohter going if there's nothing they can do!!!!!!!!!! Like people are actually screaming at me, thi… Continue