Syringomyelia Awareness Wristbands



Help raise awareness by purchasing and wearing your Syringomyelia wristband. A great conversation piece in telling others about SM, helping to build a strong foundation of support from the ground up and bringing awareness to this rare disabling neurological condition. This custom design RED with white accented writing and Canadian Maple Leaf silicone debossed wristband (202mm x 12mm x 2mm) by all of us living with…

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In 2001, a shunt was placed in my syrinx.  I made almost a complete "recovery".  

My bladder began function, with therapy I was able to walk again and it took a while, but I was even able to dance. 2 years ago it started again - the falling,  bladder sensation of urgency  and I was using a cane. I went to the neurosurgen to check on my shunt.  It was fine and I asked for a script for physical therapy and that seemed to work until lately.  The symptoms returned at a very fast pace and…

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We would like to ask everyone for your feedback and opinions. The name of our social network is Carion Fenn Syringomyelia Social Network.

Who we are: Our unique social network is home for those suffering with Syringomyelia (SM) and other related medical conditions like ACM. Free of charge!

Question is? What should be on our banner to make Chiarian feel welcome? Should we stay as A Syringomyelia social network, or should we change the name. Not sure but your feedback is…

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Hey everyone,

 

we are looking into creating another wristband for our support projects, we would like to get your feedback, and any suggestion you might have. The current red one was designed by our members when we first started.

 

So we are looking for:

 

Style: Plan

Shade of Blue: royal Blue

writing on the front: Syringomyelia

writing on the back: Together we are stronger or…

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I have to say this... Writing here about my feelings does wonders. Thank you Miss Carion for making this possible :)

Iam trying to get up and get ready to go to ky for weekend with my hubby, supposed to decorate graves and go to family cookout, with my husbands family but I have had a mild headache for two days and I've been feeling achy and sore allover! I missed it last year, but iam dredding the drive and then when get there not really any good place to sleep. I don't want to be a drag but I really feel bad and try to keep up and not let my husband down! I can't even get up and get stuff done around house… Continue

More problems in here. How long it will take to find the balance? 

When I had Lyrica I had a very rare side effect. I ate pure sugar, alot. Then Doc started Triptyl. It caused elevated pressures, dry mouth and made me feel drowsy 24/7. Panacod (codein) was too addictive and made my stomach very irritated. Tramal and Oxycontin were useless. Gababentin made me lose my memory completely. Lamotrigin has been the worst. 2 weeks ago I woke up covered with nasty rash and my skin had…

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Hi pain pals !, My headaches have been awful lately... yesterday I had blood in my ear canal . Has anyone else had this symptom?  thanks xo

Wow what a ride! I think I deal with sm and then I have a few Xtra Large pain days and it feels like I right back to square 1. I don't think anybody but us would be able to understand how we can feel so bad while we look so goog lol.



We'll I just wanted to say I get you guys, at least we have someone to understand, I am very positive usually and even today but have to scrape myself of the floor somedays. I know you go through it too and that hElps.



I hope you guys will… Continue

 

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