This social network is for RAISING PUBLIC AWARENESS about Syringomyelia; a support system for those living with SM and their loved ones.

Help raise public awareness by purchasing and wearing your Syringomyelia wristband. A great conversation piece in telling others about SM, helping to build the foundation from the ground up and bringing awareness to this rare disabling n
… ContinueCreated by Carion Fenn {SM}-Founder Oct 13, 2008 at 9:23pm. Last updated by Carion Fenn {SM}-Founder Jan. 11, 2009.


Hello
I'm curious. How many of you work or are under education? How many hours do you work each week?
I'm under education. I just startet 2. semester at Aalborg Universitet. I'm going to be a socialworker (there i 3 years left).
Sometimes it is really hard because of the pain and symptoms (from SM), but I really hope I can get through the next 3 years. And it doesn't get any easier with three children.
Hope everyone can understand what I hav
… ContinuePosted by Mette Bersang Poulsen (SM) on February 8, 2010 at 11:42am — 2 Comments
Hi I just started Keppra 4 weeks ago for nerve pain and just had pain man. appt. and he said quit the keppra and im putting you on Remeron just at night for sleep and he wants me to wean off of Percocet and still take klonopin 2pills three times a day.
I have NO relief at all. The Remeron does scare me and it has made me just want to sleep ALL DAY. I am having alot of hard time with my husband, He thinks this is all in my head and I have no one to tlak to. Any ideas? What can help reli
… ContinuePosted by Tiffany Okie(SM) on February 8, 2010 at 9:25am
Hey everyone. Remember me?? I'm so sorry I haven't posted in SUCH a long time. I've been having a lot of issues :S
Well as you might recall, I was waiting to see a neurosurgeon for the first time. Well that time came last week.
I had no idea what to expect, as all I knew was the the radiologist found Chiari on my CT and MRI and this was the next step. Mind you I had been fighting my doctor for 5 years with debilitating headaches, etc for her to do something, but
… ContinuePosted by Beth Carr on February 7, 2010 at 11:05pm — 1 Comment
Posted by Shona Hanna SM on February 7, 2010 at 6:45pm — 3 Comments
Hey, I'm sorry to be taking up so much of the blog space lately, I feel like a whiner. I just feel disheartened, frustrated, and kinda hopeless. I know those are probable dramatic words for how I'm feeling, but it's all I could think of. lol. I guess maybe I'm feeling a little hurt that these doctors seem to be making prejudgements about me and they seem to be labelling me. I just don't understand. I can't remember if I mentioned this in my last post, so sorry if I'm repeating myself. I ran i
… ContinuePosted by Jody(SM) on February 6, 2010 at 10:59pm — 14 Comments
I find it hard to accept the limitations that my body now has. My arms and upper back have been getting worse. I always had lower back and hip, leg pain, I was fortunate not to have total back. Now, I not only have pain, but have lost strength. Over the last few weeks, I have broke many glasses, dropped a cookie sheet into the oven, and spilled hot tea on my legs. I also notice that I cannot feel the right temp in the tub...and have many bruises from not realizing I have hurt my legs. My toes
… ContinuePosted by Joann H on February 5, 2010 at 6:24pm — 16 Comments
Posted by Nicole McFadden (SM) on February 4, 2010 at 6:03pm — 15 Comments
Posted by Jody(SM) on February 4, 2010 at 3:17pm — 13 Comments
Posted by Carrie SM ACM on February 3, 2010 at 9:00am — 3 Comments
Posted by Jody(SM) on February 2, 2010 at 11:38pm — 3 Comments
Saturday
June 5, 2010 from 11:30am to 6pm – Tri-State Area in the US
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