Hello

I'm curious. How many of you work or are under education? How many hours do you work each week?

I'm under education. I just startet 2. semester at Aalborg Universitet. I'm going to be a socialworker (there i 3 years left).

Sometimes it is really hard because of the pain and symptoms (from SM), but I really hope I can get through the next 3 years. And it doesn't get any easier with three children.

Hope everyone can understand what I hav

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Hi I just started Keppra 4 weeks ago for nerve pain and just had pain man. appt. and he said quit the keppra and im putting you on Remeron just at night for sleep and he wants me to wean off of Percocet and still take klonopin 2pills three times a day.

I have NO relief at all. The Remeron does scare me and it has made me just want to sleep ALL DAY. I am having alot of hard time with my husband, He thinks this is all in my head and I have no one to tlak to. Any ideas? What can help reli

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Hey everyone. Remember me?? I'm so sorry I haven't posted in SUCH a long time. I've been having a lot of issues :S

Well as you might recall, I was waiting to see a neurosurgeon for the first time. Well that time came last week.

I had no idea what to expect, as all I knew was the the radiologist found Chiari on my CT and MRI and this was the next step. Mind you I had been fighting my doctor for 5 years with debilitating headaches, etc for her to do something, but

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I do find some relief from doing a bit of yoga every night. If I don't it is amazing how much flexibility I can lose in such a short amount of time. Many people compensate with other parts of their bodies when they are in pain and can subsequently cause more pain and or damage. Twenty minutes even once a day to give my whole body a stretch keeps me from feeling as old as I do most of the time.

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Hey, I'm sorry to be taking up so much of the blog space lately, I feel like a whiner. I just feel disheartened, frustrated, and kinda hopeless. I know those are probable dramatic words for how I'm feeling, but it's all I could think of. lol. I guess maybe I'm feeling a little hurt that these doctors seem to be making prejudgements about me and they seem to be labelling me. I just don't understand. I can't remember if I mentioned this in my last post, so sorry if I'm repeating myself. I ran i

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I find it hard to accept the limitations that my body now has. My arms and upper back have been getting worse. I always had lower back and hip, leg pain, I was fortunate not to have total back. Now, I not only have pain, but have lost strength. Over the last few weeks, I have broke many glasses, dropped a cookie sheet into the oven, and spilled hot tea on my legs. I also notice that I cannot feel the right temp in the tub...and have many bruises from not realizing I have hurt my legs. My toes

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I went to my GP today to get the Neurologist report. As I was putting papers together to send to my insurance, I read again what was said about the "syrinx". It says it approx. 3mm...no word of a lie, I never read that before today...
I really think, my mind was not ready to process it, just yet!
Unless, I did not understand properly "syrinx" means syringomyelia...right???

The next step are still
-Brain MRI, Spine MRI to see more of the syrinx.
-physiotherapy for y arms
-neurosurgeon for the C-… Continue

I saw the NS today for the first time. He came in, sat down and asked about my symptoms that he was reading from my file, so I gave him my typed out copy of all my symptoms. We talked about these for a bit. Then he brought up the MRI so he could view it...for the 1st time...I asked him how familiar he was with SM, he said, oh very familiar, but don't worry, i don't think that's what you have. Sigh...and that's where it begins. We're looking at the MRI's and only he looked at maybe 4-5 of them...… Continue

Hello to everyone! Often I wonder if I gave my body to someone for a minute..what would they feel? Have I been adjusting to this for so long that my tolerance is huge? or is it that I feel even the smallest of things? I feel lucky to have just received a disability benefit though I will not share that information with people. People do not understand. Besides some slight facial paraysis and a hitch in my giddyup I try hard to hide, I look normal. I do not feel it.
I read with interest the posts… Continue

I have my first appointment with the NS on Thursday. Does anyone have any advice? Or can you suggest questions I need to ask him, or what specific information I need to bring? Those of you from Kingston, do you have Dr.P? I was advised not to use names on here...but this isn't in a negative tone.
I just HAD to stay up for the season premiere of LOST...and that put me past my bedtime...again...lol. I'm gonna be tired tomorrow. The fatigue has been bad lately...hope tomorrow flies by. :-)